i was just diagnosed with als. there is a little more info out there to find out. it sure helps to have a good support system. i have dropped foot and a brace and use a walker. i wear a life alert bracelet and have a good neighbor that checks on me every day. i also use a bipap breathing machine which really helps me. don't give up hope

I watched the 'Live for the Moment' was very disappointed in it. I was diagnosed with ALS, Aug 13th, 2008, the day after my 30th wedding anniversary. You only mentioned ALS for about 10 minutes. just showed Roger trying to eat eggs, his hand shaking. Rest of the show was a cross between " Bucket List" and " Make a Wish" program for adluts...No explaining how is fatal disease attacks a healthy body and leaves it in a paralyzed shell with a sharp mind, who can nolonger talk, breath on their own, or can take care of theirselves...We need ALS AWARENESS to educate people about this disease that strikes anyone, it not choosey. Motor Neuron Diseases has been known about for over 140 years, sadly still no treatment or cure....When my GP retired and I had to find a new doctor, I would interview them and ask if they known anything about ALS---most of them had very little knowledge except that it was fatal. Most didn't want me as a patient...I found one that was happy to learn and wanted the challange...We just wanted more, and the show fell flat when it came to ALS awareness...You should have done better....show the good, bad and the ugly of this monster....I hope at when we try to have benefits or fundraiser, that people don't say to us, " Oh I watch that Live for the Moment, ALS doesn't seem so deadly. That guy, snowskied, climbed into a navy jet, ect..." If you do another disease please educate the people watching....not counting your money you make from the show....

Great movie we did enjoy I cried often .Hubby he said the movie was nice but it did not tell anything about what ALS is about How do you live with ALS ? I was really surprised when th movie was over what he said h's a quit man. Next day at work a lady who has ALS friend was talking with him and how disappointed she was. He was really disappointed . My husband said he's the one who watches me suffer everyday , he knows what ALS is and this movie was not ALS. He suffers inside too I know caring for me . Hubby met me 2002 I was trying to survive in a Nursing Home. I'm sure I would have died if not he rescued me. I progressed quickly within a year I had cane, leg braces walker with seat & soon a wheel chair I could not walk at all nor no use of hands , arms. I used a Bi-Pap nights , naps. BED bound I am now, I need a vent as soon as possible. Income is low and our Country has no Home Care for disabled and Elderly . I want a chance to live. My hubby only 24/7 caregiver past 8 years with poor health he wants me to be able to have a vent & not die . He's upset at the movie what it portrayed ALS as , he said I have watch my wife suffer everyday , there is no joy in watching someone you love gasp for air , not able to stop choking and get a breath , only to keep her alive from going into Respiratory failure , I know ALS is not what this Movie was about , people living with ALS suffer each and everyday. My wife always smiles, she is always positive , & looking forward to the future and a CURE ! We are not sure how we will do this but i want her to have a vent and best care at home where she wants to be , where she should be ! Most people even in the Medical field DO NOT know what ALS is or about it. A PT boss was interviewing her for care the other day, asking her the day, who's the President, how many fingers he had up , He told her to close her eyes and he touch her with his pen and she should tell him where he was touching her. He said I can't believe you still have so much feeling . My wife told him people living with ALS DO NOT lose their feeling of touch , we do not lose our sense . He was rude & not the only one most ALL RN Nurse do not know about ALS , some neurologist .. Put the money into Research for a Cure for ALS how many decades have we been waiting :*( , money for things Pals needs, repite care , funds to ALS Guardian Angels an Angel always here/there for Pals like no other. When I got Dx I never heard of ALS. Most people i know and come across even in the medical Field do not know ALS . The movie was great like i said, good acting I know you all meant well i just wish there was ALS awareness in the show, Even little before and after. Maybe even an ALS person with cane or walker . At the end of show when over could have taken 5 minutes to tell about ALS and where people can go for help and where to make donations.

I was diagnosed with ALS in January, 2004, but had symptoms as long as 10 years before my diagnosis. Although the 2-5 year prognosis is an average, there are developments in the last few years to help patients live a lot longer. I personally know a man in his 16th year and a woman in her 13th year with the illness. I try not to focus on the fact that I am dying, but cherish the fact that I am still living. I will say one thing though: there are often many friends and supporters at the beginning, but they fall off as the disease progresses. People get scared and uncomfortable and stop coming around. I hope all those friends and relatives that showed up at the end of the show, will stick around for the long run, as Roger's condition worsens and he really needs the love and support. I also hope they will be there to pitch in on the care Roger will need, because all the love in the world will not change the fact that his devoted wife and kids will be exhausted!!

The reviewer of this show sounds like a jerk. Maybe that's his angle. His 'voice' is childish and pouty and he comes across as someone who hasn't experienced much of anything in his life except TV. The first episode of a show is always the pancake that gets tossed out, so a little bit of constructive feedback instead of bitchiness, would've been useful. If this is how the reviewer thinks he gets his writing chops, think again.

please google: ALS versus Lyme

After an entire life of dreaming, fulfilling dreams, becoming educated, trained, working at a fulfilling career, making innumerable friendships, given great responsibility, having countless opportunities for growth and improvement and seeing many countries of our world, I find myself blessed.

Did I always live life, truly live it? I am not convinced that I have. I spent a lot of days and weeks getting life done. I probably theorized that the best use of my time was the work I did and the tasks I completed. I learned to become a stellar organized man, and effective administrator. Christine often reminded me to be more spontaneous. Perhaps I am being too hard on myself in this assessment yet I realize now that the best use of my time requires that I know what is most important and then give myself to that.

The lesson was reinforced on Thursday evening when I watched a reality TV show called "Live For the Moment."